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Breaking Down Autism & Special Needs Acronyms


Hello Landing Crew! Today is going to be a video to help with all of our other videos of course, today is going to be abbreviations and definitions of autism Not just autism it's more gonna be special-needs but of course you'll see these a lot with autism sometimes if you are new to being a special needs mom or special needs caregiver or maybe you're just entering the field of it or maybe you're just like watching our family and we start spouting off ot PT ASDP DD we're like throwing the alphabet at you it can be a little bit confusing to know exactly what we are talking about so we're gonna fix that and we're gonna go over at all if you are new and you don't know who I am I am Stephanie I had six children four of them have been technically diagnosed with autism three of them for sure one we're still questioning marking it yet we will find out next week about him so the first abbreviation is of course going to be a SD ASD stands for autism spectrum disorder I usually don't use it that often because unless you're in the autism world you just don't know what it means the next one is ID ID is intellectual disability it's formally known as a mental retardation but they changed the term because it got such a negative connotation attached to it so they changed it to intellectual disability and all that means is that an individual has an IQ lower than 70 s P D is known as sensory processing disorder and that just means that a child has issues processing sensory one way or the other you can have someone who craves sensory because they process it differently or you could have someone who kind of like avoids it we have children that have all different reactions to sensory so each one kind of holds its own issues if you're diagnosed with autism usually don't have like a separate sensory diagnosis sometimes you might but for the most part sensory issues are just kind of known to be like included in the ASD diagnosis SPD if you watched my pregnancy updates as a different thing it's like has to do with like your your your pubic bone and pregnancy in its separate so if you've ever watched my old pregnancy videos I actually confused some some special needs mamas because they were just like I didn't know sensory issues could cause that but it's it's different but they both have the appreciate abbreviation of SBE therapies I've kind of talked about in other videos like how to get services and I went into it but oats he is stands for occupational therapy it's used most commonly for sensory issues and fine motor skills and it can also be used for feeding issues because a lot of times those go hand-in-hand since our issues and fine motor skills delay can definitely cause some some eating issues so those are the most ones I feel like ot works on a lot though it covers a whole lot PT stands for physical therapy and that just mainly might wait that bath that works on the gross motor skills so the big movements running walking arm movement arm strength it can also be like back muscles and things like that if you're ever injured you you usually have to go to physical therapy like Noah has scoliosis so not only are they working on his low muscle tone with physical therapy but they're also working on his scoliosis and his thoracic hyper catharsis where he kind of like has a hunchback so next we have ABA which stands for applied behavioral analysis therapy now this one I probably want to do a separate video I want to kind of maybe in the future sit down with one of our ABA therapists or just kind of show what our sessions look like as there is a lot of controversy around ABA therapy ABA therapy does not have a history at all and so that's where a lot of the controversy comes from and the only reason I'm explaining this is because attach to what is a BA is also long as a controversial so some of the methods in the past and some in the present not every therapist not every company has the best intentions with children it's like anything else you just have to be involved and kind of know but basically ABA works on everything that was just mentioned but they're usually more focused on behavioral skills life skills it can work on so many things and we would be here all day as I said I'll probably do it another video in the future but for us for our four-year-old we are working on transitions safety safety is a really big one then they also work on academics suits for us for our four-year-old it's basically just he's he's in preschool they work on you know recognizing like numbers and letters they do playdough and bubbles and they play and they read and they do all these things while also working on like safety and other things like that for Noah they're working on social skills life skills and then they're also working on emotion regulation so just Noah learning that when something happens small like maybe Lex takes his remote or something like it's okay to have those those big fillings but just to kind of process them easier so he doesn't have a big reaction over a small thing if that makes sense so it can work on many many different things Liam will be starting a BA at next month and we're mainly going to focus around him in communication you get to decide what your child works on and what they don't there are things that we've set down and then like no we are completely okay with like stemming we don't want to stop stemming we don't want to force eye contact there are certain things that were very very strict on but you get to kind of decide what it what it can help with but most commonly I feel like it's behaviors behaviors are usually the most common reason ABA gets involved but they can actually coach reit with ot PT speech and all that and so that way everyone's on the same team and kind of working towards the same goal the next one is speech speech I never abbreviate speech but I have seen speech abbreviated as st which is speech therapy or if you see SLP that's actually the official name for a speech therapist it's called a speech language pathologist so it's kind of a long fancy name because they handle a lot of speech is the one that has helped us the most with feeding so speech can also use do feeding therapy as well they have made the best progress with Penelope I'm so excited about it they just kind of work on everything which in turn if you're working on on feeding and strengthening those those mouth muscles you're also going to be helping them talk to so it kind of all goes hand in hand they can work on sign language pecs devise all of those things receptive language I'm impressed with all of our therapies here but speech is the one that I'm just amazed by and I just love sitting in with the sessions and watching watching how amazing she is with our kiddos this is more school related so IEP IEP stands for an individualized educational plan now this is basically a legal document and it is used a lot when a child means extensive accommodations in the classroom Lex has an IEP Noah has an IEP Liam will have an IEP it breaks down what their categories are which will kind of go over in a second but also breaks down what the goals are and what the accommodations they need every IEP looks different depending on what each child needs a 504 plan is kind of similar to an IEP but it's basically like a mini IEP so I see this a lot for like ADHD or more medical accommodations as opposed to an IEP where it's usually more behavioral for one reason or the other the classifications that you might see on IEP is ID the intellectual disability you might see ASD the autism you might see D D which is developmentally delayed that's what Lux is considered under and I don't think Lux will have an IEP for like a long period but he does have one right now another like category is EBD which is emotional behavioral delayed or disorder Noah went DD EBD to ID and then ASD and all of those are on his IEP it's very important to make sure that they have the correct classification but if you hear those that's basically what it is I think they're they're pretty self-explanatory just from the name but then also if you hear II I that is early intervention in Florida it was called early steps but here Colorado it's called early intervention and every state has a different name for it but basically it's early intervention not only does every state have a different name for it but every state also offers different services so our early intervention in Florida I can't even explain it it was so weird but here in Colorado early intervention is you have not everyone needs this but I can only speak for ourselves so for us we have an autism team and we have an autism developmental specialist that actually helps us with the kids but then we also have ot and speech that consults with them as well so we kind of have like our own team inside early intervention in addition to the private therapies we also have as well it vary state to state but it's just begun to be a team of people hopefully a team of people who are there to help your child succeed in different ways in Florida it just was not like that like in Florida you needed to get a private therapist in order to really have your child succeed also was something else people asked us hypotonia because sometimes I use that term hypotonia just means blow muscles in another term that you might hear is Oh DD and that's oppositional defiant disorder sometimes this label is given when doctors kind of realize something is going on behaviorally but they're not exactly sure what so it's basically just a defiant child that seems to kind of act out a lot I don't know a lot about OD D if I'm honest it was a label that was put on Noah and then quickly taken away because they realize other stuff was going on these two are no longer on the DSM criteria and in the United States at least and that's PDD and pdd-nos it stood for pervasive developmental disorder and it was one of those that was just kind of like a blanket term so if a child was showing some signs of autism but not enough to have 100% say that they had autism and that is no a diagnosis on the DSM criteria and neither is a DD so ADHD also got upgraded to before you would have ADHD or a DD now it's ADHD C ADHD i and then ADHD h i think and it's for ADHD combined type ADHD and inattentive or ADHD hyperactivity and that's how they kind of determine it now when i was diagnosed when I was six they diagnosed with me with ADHD because that meant like I was an intended but I was also hyperactive but like when they diagnosed my daughter when she was like six or seven they said she had a DD and so it's so confusing trying to remember which is which so I guess they decided to just do ADHD and then tie something to the end so one abbreviation that you guys will never hear me talk about on our channel because it doesn't apply to us is rath but I feel like it's something that should be out there more and it's not really talked about it happens a lot and like adopted children foster children it's called reactive attachment disorder it is a very tough diagnosis my hats out to all the mamas and daddies that have to kind of handle that I guess but it's basically when a child has trouble attaching like emotionally attaching for whatever reason there's many different reasons that happens I encourage you guys to kind of research it I don't know a whole bunch about it I just kind of like know enough to to briefly talk about it it can cause all types of an emotional issues and sometimes those issues can actually kind of mirror as autism even though it's not so if you ever hear rad it's a very very intense diagnosis I wanted to talk about some of the things that don't have abbreviations but there are most common questions like what is this what is that so the first one is what is respite I joke about it being like an experienced babysitter but it's basically a a caregiver or professional that is hopefully experienced and trained in autism in some way they basically come in to give the family a break whether that is you know we didn't sleep and they're coming in and helping the kids while one of us naps or something or maybe we need help at the grocery store or doctor's appointment or maybe we're going to a theme park and we'd like some help maybe Lonnie and I want to go on a date and we don't want to rely on the older kids to always watch the younger kids kind of thing and that's kind of what they they come in and do so it's just basically family supports and to give the family a break all in all a lot of people say the parents but I think sometimes we forget that the siblings are just as affected by having a special-needs sibling it definitely puts more weight on then it puts more responsibilities that they may not have had otherwise and the next one is the waiver because I've been talking about the waivers a lot and the waivers differ state to state the waiting lists are different some states have a bunch some states only have one it just depends and the waiver is basically a program that that covers more services and more support outside of what a state Medicaid would pay for so that can be anywhere between just like basic diapers and wipes and respite and it can be all the way up to like for us it's like cleaning laundry it can be held for like horse therapy and GPS I mean the the lists for waivers are long and long and long so you just have to kind of check with your state to see if they cover that but that's basically what it is just kind of think of it as an extended insurance not everyone qualifies for the waiver you do have to have a child or children that have more extensive needs like for us we have a lot of be careful issues but we also have kids that have more needs that need to be met and have a lot of sleeping issues and the last one is stimming a lot of people we've had some questions since our youngest video about her stemming that she stems a lot and stimming is basically just stimulation through repetitive behaviors or movements that can be vocally that can be with their hands their feet their body it could be a million different ways the list of stimming is so so long and even if I did make a list other people would have different things to add but as stimming can sometimes be pretty personal and custom to that child or individual some of the most common stems are our rocking jumping and flapping head shaking but like for Penelope she has a wrist him she visual Sims she's a vocal sim but it basically just makes them feel better it helps them regulate those emotions whether those emotions are good or bad so sometimes you'll see it with Noah he kind of beats his chest when he gets like really like excited sometimes the man can also be from being upset as well Liam usually head shakes when he's really really late anxious or frustrated I hope you guys enjoyed this video I hope this video helps others we will see you guys tomorrow because Daniels dad and I are going to be doing a parenting stream so it'll be a lot of fun it will be at our normal video time 3:00 p

m Eastern 1:00 pm mountain time so please feel free to come over and check that out and ask questions and kind of get to know us a little bit better and I'll see you guys then where you make me buddy it will always be there there's no doubt in my mind you will always be there to see and leave the rest behind Oh cuz you will always be

Source: Youtube

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